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The DYNC1H1 Association is a 501(c)3 nonprofit organization in the United States. This is a volunteer-run organization driving towards safe and effective treatments for all patients with DYNC1H1-Related Disorders. Our EIN is 92-1502046

Wear your DA Gear

You can purchase our Taking Steps Toward Treatment Fundraising shirt and other DYNC1H1 gear through our merchandise store on Bonfire.

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DA Merchandise Shop
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Join us as we race to find a treatment for DYNC1H1-Related Disorders

DYNC1H1 Association’s 3rd Annual Puzzles for Piper

Race to complete a jigsaw puzzle in the fastest time or make a donation, we will all be joining the same cause: to raise money to fund research on DYNC1H1-Related Disorders with a constant drive towards low-risk, high reward treatments. 


The DYNC1H1 Association is the ONLY organization funding research on DYNC1H1-Related Disorders. Our goal is to raise $30,000 to fund critical research to find safe, effective treatments.

Ways You Can Get Involved:

1. Participate: Register as a team or individual to join the in-person event. Click on event link at the top of the page to begin.

2. Volunteer: Help is needed to make the event a success!

3. Donate: Support our cause with an event sponsorship or contribution of any amount.

4. Spread the Word: Share our event with your friends, family and colleagues

Event Details:

- Date: Saturday, August 15th

- Location: Houston, TX

- Registration Fee: $50

We need your help to find a safe, effective treatment!

Donate Today.

3% Cover the Fee

The DYNC1H1 Association is a 501(c)3 nonprofit organization in the United States. This is a volunteer-run organization driving towards safe and effective treatments for all patients with DYNC1H1-Related Disorders. Our EIN is 92-1502046

Can your employer’s matching fund triple your donation?

We’re an approved charity on Benevity, GoodStack, YourCause, and many other corporate matching programs. Look into if your company can make your donation go even further! Historical donations may even match!

Looking for other ways to donate?

  • Venmo: @dync1h1

  • PayPal GivingFund Charity

  • Facebook/Instagram: Start a fundraiser and select the DYNC1H1 Association as the nonprofit.

  • Mail a Check made out to the DYNC1H1 Association to PO Box 834, Orange, CT 06477

  • Want to coordinate with us? Email contact@dync1h1.org

Your purchases can help the DA!

  • Buy DYNC1H1 gear on Bonfire

  • Use our Minted 20% Discount Code for your next card/stationary or gift purchase: FUNDRAISEDYNC1H1

  • Shop our recommended items on Amazon!

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Every Donation gives families of DRD patients a hope for a life with less pain and difficulty.