Wear your DA Gear

You can purchase our Taking Steps Toward Treatment Fundraising shirt and other DYNC1H1 gear through our merchandise store on Bonfire.

Order by May 10th to ensure delivery by May 31st! You can also make custom shirts for your team.

DA Merchandise Shop
DA Merchandise Shop

Join us as we move to find a treatment for DYNC1H1-Related Disorders

DYNC1H1 Association’s 2nd Annual Virtual Walk

Even though we won’t be walking, running or rolling on the same course, we will all be moving for the same cause: to raise money to fund research on DYNC1H1-Related Disorders with a constant drive towards low-risk, high reward treatments. 


The DYNC1H1 Association is the ONLY organization funding research on DYNC1H1-Related Disorders. Our goal is to raise $15,000 to fund critical research to find safe, effective treatments.

Ways You Can Get Involved:

1. Participate: Walk or run with us in-person or virtually

2. Form a Team: Gather friends, family, and colleagues and walk together or see if another team is meeting near you!

3. Donate: Support our cause with a contribution of any amount.

4. Spread the Word: Share our event with your friends, family and colleagues

Event Details:

- Date: Saturday, May 30 - Saturday, June 6, 2026

- Location: Wherever you are!

- Registration Fee: $25

We need your help to find a safe, effective treatment!

Donate Today.

3% Cover the Fee

The DYNC1H1 Association is a 501(c)3 nonprofit organization in the United States. This is a volunteer-run organization driving towards safe and effective treatments for all patients with DYNC1H1-Related Disorders. Our EIN is 92-1502046

Can your employer’s matching fund triple your donation?

We’re an approved charity on Benevity, GoodStack, YourCause, and many other corporate matching programs. Look into if your company can make your donation go even further! Historical donations may even match!

Looking for other ways to donate?

  • Venmo: @dync1h1

  • PayPal GivingFund Charity

  • Facebook/Instagram: Start a fundraiser and select the DYNC1H1 Association as the nonprofit.

  • Mail a Check made out to the DYNC1H1 Association to PO Box 834, Orange, CT 06477

  • Want to coordinate with us? Email contact@dync1h1.org

Your purchases can help the DA!

  • Buy DYNC1H1 gear on Bonfire

  • Use our Minted 20% Discount Code for your next card/stationary or gift purchase: FUNDRAISEDYNC1H1

  • Shop our recommended items on Amazon!

Every Donation gives families of DRD patients a hope for a life with less pain and difficulty.