DYNC1H1 Medical Researchers Network
How medical professionals and researchers can contribute to our organization and get involved with our community.
Interested in DYNC1H1 Research & Dynein Science?
The DYNC1H1 Association is cultivating relationships with scientists, medical professionals, and pharmaceutical developers in the hopes of accelerating research towards meaningful treatments for those affected by DYNC1H1-associated neurological disorders.
We welcome all researchers -new or experienced- who want to contribute to this significant work.
Join our research network!
As a part of our research network, you will receive invitations to our monthly Scientific Roundtables, as well as meaningful updates about other organizational events and opportunities for engagement, and we will promote any research opportunities to our patient community. Our community is highly motivated to participate in research, with many families willing to travel if needed.
DAND disorders are complex, degenerative, and often disabling. Many patients see doctors who can’t offer clear answers, and getting a diagnosis can be a long, challenging journey—often requiring individuals or families to push through a system not equipped to handle ultra-rare diseases.