Join the DYNC1H1 Association in hosting a panel discussion on DYNC1H1-Related Disorders (DRD) through the lifespan. Our three panelists either have adult children with DRD, or are patients raising DRD children themselves. We are honored that they have chosen to share their wealth of knowledge with us.

Register via Zoom by clicking the button below.

In this Panel-style community chat, 3 community members will share their experiences with growing up affected, raising affected children into adulthood, and all the trials, tribulations, and joys that come with that. Questions can be asked ahead of time or in the Zoom chat. To protect the privacy of the participants, this event will not be recorded.

The panel will be moderated by Lisa, one of our founders, whose 10 year old daughter with DYNC1H1-related disorder will probably make an appearance because she loves Zoom calls.