DYNC1H1 - Related Disorders: Welcome Packet

Written By Lisa Costen

Caroline Barabell, our spring 2026 GCSX intern, worked hard on making a highly informative “Welcome Packet” to help guide new patients on their journey with DYNC1H1-related disorders. We hope that you find it useful! To download it as a pdf, click here.

Click here for DYNC1H1 Welcome Packet

DYNC1H1 Association Welcome Packet with information on DYNC1H1-Related Disorders, how to pursue treatments, and what the DA does to accelerate research.

Lisa Costen
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